Epidermolysis Bullosa

Ellen McCarthy:

Every morning, Kevin Federici pulls on a head lamp, sterilizes a sewing needle and prepares to prick his baby girl all over her tiny body. She fights him with everything she has, kicking, screaming, writhing as Kevin’s mother-in-law tries to hold her granddaughter still. This process can take three hours, sometimes four or five.

The video is also heartbreaking.

Job vs. Home

Toni Morrison:

I have worked for all sorts of people since then, geniuses and morons, quick-witted and dull, bighearted and narrow. I’ve had many kinds of jobs, but since that conversation with my father I have never considered the level of labor to be the measure of myself, and I have never placed the security of a job above the value of home.

Great advice.

Ailing Hell

One less powerful sex offender in the world.

Em Tao Hip-Hop

Cái hook của bài này bị in vô não mấy hôm nay: “mấy thằng em của tao nó hip-hop.” Lời bài cũng buồn cười. Jombie:

Và 5 giờ khuya rồi vào buổi sáng
Uống ly café xẽ thịt ra chợ bán
Công chuyện nó làm lai rai theo ngày tháng
Kiếm tiền cho nhiều cuộc đời nó đỡ chán.

Kind of New

Fred Kaplan’s excellent profile of the outstanding Cécile McLorin Salvant in The New Yorker:

In its sixty years as a jazz club, the Vanguard has headlined few women and fewer singers of either gender. But Salvant, virtually unknown two years earlier, had built an avid following, winning a Grammy and several awards from critics, who praised her singing as “singularly arresting” and “artistry of the highest class.”

The Purchaser’s Option

A chilling song about slavery by Rhiannon Giddens:

I’ve got a baby. Shall I keep him?
Twill (ph) come the day when I’ll be weeping.
But how can I love him any less,
this little babe upon my breast?

You can take my body.
You can dig my bones.
You can take my blood
but not my soul.

I’ve got a body dark and strong.
I was young but not for long.
You took me to bed a little girl,
left me in a woman’s world.

Listen to Giddens’s remarkable performance and interview with Terry Gross on “Fresh Air.”

Symptom of Monogamy

In her fascinating essay on open marriage, Susan Dominus writes:

It took decades for sex researchers to consider the possibility that women’s fabled low libido might be a symptom of monogamy. An entire scientific field, well chronicled by Daniel Bergner (a contributing writer for the magazine) in his book “What Women Want,” has evolved to try to understand the near-total diminishment of lust for their partners that so many women in long-term monogamous relationships feel. One 2002 study found that men and women in committed relationships shared equal desire at the onset of their relationships, although for women, that desire dropped precipitously between one and four years into the relationship; for men, the desire remained high throughout that period. In his book, Bergner cites research suggesting that women desire novelty as much as men. The recent attempts to formulate medication to address waning sexual interest has been predicated on the assumption that one possible response — indulging an interest in newer partners — would never be practical and could be destabilizing.

That explains it. Call me old school but I don’t see open marriage is an option.

Con Tin và Con Nuôi

Một câu chuyện thú vị và cảm tình giữa người láy xe 71 tuổi và một trong ba phạm nhân (hai người Việt) trốn tù do Paul Kix kể lại. Bài này viết bằng tiếng Anh rất hay. Nên đọc.

Artless Jargon

Jia Tolentino reviews Ivanka’s new book:

“Women Who Work” is mostly composed of artless jargon (“All women benefit immeasurably by architecting their lives”) and inspirational quotes you might find by Googling “inspirational quotes.” Her exhortations feel even emptier than usual in light of Trump’s stated policy goals. “We must fight for ourselves, for our rights not just as workers but also as women,” Ivanka writes, and, elsewhere, “Honor yourself by exploring the kind of life you deserve.” The imagined audience for the book is so rarefied that Ivanka confidently calls paying bills and buying groceries “not enormously impactful” to one’s daily productivity.

Tolentino points out:

On page one hundred and four, she finally lays out a woman-specific suggestion: we should be more like men and apply for jobs for which we’re not completely qualified. Given the circumstances, it’s almost funny.

62 Years Apart

On December 1, 1955, a black woman was arrested for refusing to give up her seat. On April 9, 2017, an Asian man was dragged off for refusing to give up his seat.